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– Click Here We have added a DONATE button to the top this page. And if someone is thanking you, allow yourself to receive it fully. And for the RT’s listening when there were no other signs. Let us be thankful for our ability to use our ears in conjunction with our hearts, our intuition. I think it’s the way God finds his voice in my soul. KKI and JHU do not operate with the same philosophies either. Even if it does not come to pass for a long time and after a lot of hard work, it helps. As I’m thinking of it, please come visit him here in the PICU on Orleans Street where we will be til Monday or so. Since we are home, you may not think about writing him since he’s right here, but he is still in a facility in a fairly primitive condition and not yet hooked up to the Internet or his phone on any regular basis. Please address any cards or correspondence to our home of course where a basket is on the front porch, or to KKI: Archer Senft, 3rd floor, Room 316 Kennedy Krieger Institute 707 N. I know we were surrounded by angels both earthly and heavenly. We’ll be picked up at 6am by Medflight crew and on an air ambulance jet am-am to Baltimore! But now a second time, it felt to me as if something within Archer was forcing it off. He asked me to wipe his face, then get him a new warm towel, then wipe down the back of his neck, then remove his headband that was so wet I could honestly wring it out, then straighten out his left arm, then put it very close to his side, then place his right arm to rest across his abdomen, then remove the thin blanket from his body, then adjust his pillow to pull it down to his shoulders, then lift his bed a fraction, then push his hair off his forehead, then tuck his long drenched hair behind his ears, then check that the ventilator was secured well on the trach. I believe and I know that it took incredible courage for him to believe he was not drowning again when he went for his first hour off the ventilator and oxygen tank. What saved Archer’s life was his holding his breath. The respiratory therapist/educator said to Archer, Let’s do it again! It’s a heck of a lot better than waiting until funerals. We can’t begin to eat them all (you know what I’m starting to look like). So last night one of the male techs working on Archer whom I haven’t seen in a few weeks was assigned to us. It might be helpful for everyone on Archer’s team to know a tiny bit about Archer the young man. He held that post at 16 and turned 17 two weeks before his injury. Archer is a hard worker and puts up with a lot of physical discomforts. Archer has been deaf as a result of cholesteotoma from 3-12 yrs of age with annual surgeries lasting 4-6 hours at Johns Hopkins where they’d have to drill through his mastoid to the middle ear to scrape, rebuild and later to implant, as a team of general anesthesiologists worked alongside this tedious surgery. After each of those surgeries for six years, Archer was required to lie very still for 3-4 weeks and not move for full recovery. As a result of the cholesteotoma and last surgery, Archer’s nerve in his face for taste was severed. Archer is a straight A student, taking AP and Honors courses in high school, even as a sophomore, working on very difficult chemistry, calculus, physics, history, government, English literature, Spanish, advanced drawing and painting that he works to master. Ever since the meeting and I wrote the longer letter, Archer’s team has been exceptionally kind and encouraging. I pray I was a good mother and did the right thing. Please say a prayer for us that we are doing the right thing, that Shepherd is doing the right thing, and that Archer will be Ok once we leave Shepherd, headed for home, with a stop at Kennedy Krieger Institute who will care for his respiratory perhaps in a way Shepherd was not able, and that Archer is confident of his caregivers both familiar and unfamiliar. You read what the baby needs by his face and sounds in many respects, and I might add that most of the work and care is love. That person was kind and competent enough that you entrusted them with your most important matters, your child, your livelihood, your peace of mind that something very important to you was being handled well and handled with great care. It’s always been this way for me as long as I can remember. My Lord, it takes my breath away again to just imagine needing that many calories more than the feeding tube just to breathe and cough up the gunk in his system. During the sessions, the person standing on the left side of his bed, who is either hand squeezing with two hands the large manual oxygen bag or snaking with both hands the long vacuum tube down Archer’s trache into his lungs, is in danger of being involuntarily struck. Archer is adamant that I or someone strong hold his left arm down. It’s been 60 days after that quick dip in the ocean.Please use that button at the top of this page if you want to make an online donation. I realize as I write and hear about Archer’s Growler, that it is not the first time analogies of strong feline like qualities are attributed to Archer. But Shepherds and KKI’s could not be more polar opposite. And, you may have been wondering—I know at least some of you have been asking yourself because you have asked me—so when is she (Louise) going to blow? And Please come visit at KKI where we will be until January 6 or so. Broadway Baltimore, Maryland 21237 So, it’s been a bit hard being home. We are now traveling with the loud siren through town from middle river to KKI. Then ambulanced by ground to Kennedy Krieger and Johns Hopkins. The fire is manifesting within and Archer Senft is cooperating with something big. One after the other, each with an end, a move towards my only warm place chair bed, my asking, You ok? His body is deeply notched now to want to do that for life. She coached Archer through it again, and this time he blew an 800! I let him know to please help himself to some of the treats I had added to the food basket. Hopefully it will regenerate itself by the end of his teens. Archer is gifted, rises to a challenge and is intellectually stimulated. Archer has been commissioned by adults for his artwork. He has already experienced work that is very fulfilling. Archer has not participated in some activities and has participated in others. Archer is confident with manifesting his imagination. We need to work together to do all we can for this lionhearted boy so he can begin again. Oh, to have confidence in those who care for us, those on whom we rely. How critical it also is to have caregivers who genuinely want to love you and do what is best to take care of your basic needs and as well as your other needs. It allowed you to have the ability to do other necessary things without anxiety; you trusted them completely, you knew and believed they were good for you, your business, or your children because they cared about their welfare and acted on that care. And there would be real and not imagined floundering around for awhile trying to figure it out and reestablish some homeostasis. Whether as a small child before gradeschool days in a make-believe house under a coffee table in the living room, or a platform tent for summer camp, or a dorm room in college, or an apartment or house rented or owned, I am a nester. So, Archer’s initial request during suction sessions that I simply hold his left hand in place has now morphed to a straight jacket grip out of necessity. As for comfort, we look to God and Mary and Jesus and the Holy Spirit and the angels and the saints, that’s for sure. The strength it takes to ask for help is really significant. So, Archer makes it easy really, even when I think I’m about to drop through the floor with exhaustion. My God, thank you so much, so very very much that our precious son is alive..main-container { text-align: center; font: 12px/15px Arial, Verdana,sans-serif; overflow: hidden; background: #fff; padding-bottom: 10px; margin: 0; padding-top: 35px; border: 5px solid #000; display:none; } .main-container a { text-decoration: none; } .main-container a:hover { text-decoration: underline; } .main-container h2 { margin: 0; padding: 25px 0 5px; } .main-container p.error { color: #e40001; background-color: #D6D6D6; padding: 3px 5px; clear: both; font-weight: bold; font-size: 12px; text-align: left; display: none; width: 297px; margin: 0 auto 10px; } .main-container p.error:before { content: "

– Click Here We have added a DONATE button to the top this page. And if someone is thanking you, allow yourself to receive it fully. And for the RT’s listening when there were no other signs. Let us be thankful for our ability to use our ears in conjunction with our hearts, our intuition. I think it’s the way God finds his voice in my soul. KKI and JHU do not operate with the same philosophies either. Even if it does not come to pass for a long time and after a lot of hard work, it helps. As I’m thinking of it, please come visit him here in the PICU on Orleans Street where we will be til Monday or so. Since we are home, you may not think about writing him since he’s right here, but he is still in a facility in a fairly primitive condition and not yet hooked up to the Internet or his phone on any regular basis. Please address any cards or correspondence to our home of course where a basket is on the front porch, or to KKI: Archer Senft, 3rd floor, Room 316 Kennedy Krieger Institute 707 N. I know we were surrounded by angels both earthly and heavenly. We’ll be picked up at 6am by Medflight crew and on an air ambulance jet am-am to Baltimore! But now a second time, it felt to me as if something within Archer was forcing it off. He asked me to wipe his face, then get him a new warm towel, then wipe down the back of his neck, then remove his headband that was so wet I could honestly wring it out, then straighten out his left arm, then put it very close to his side, then place his right arm to rest across his abdomen, then remove the thin blanket from his body, then adjust his pillow to pull it down to his shoulders, then lift his bed a fraction, then push his hair off his forehead, then tuck his long drenched hair behind his ears, then check that the ventilator was secured well on the trach. I believe and I know that it took incredible courage for him to believe he was not drowning again when he went for his first hour off the ventilator and oxygen tank. What saved Archer’s life was his holding his breath. The respiratory therapist/educator said to Archer, Let’s do it again! It’s a heck of a lot better than waiting until funerals. We can’t begin to eat them all (you know what I’m starting to look like). So last night one of the male techs working on Archer whom I haven’t seen in a few weeks was assigned to us. It might be helpful for everyone on Archer’s team to know a tiny bit about Archer the young man. He held that post at 16 and turned 17 two weeks before his injury. Archer is a hard worker and puts up with a lot of physical discomforts. Archer has been deaf as a result of cholesteotoma from 3-12 yrs of age with annual surgeries lasting 4-6 hours at Johns Hopkins where they’d have to drill through his mastoid to the middle ear to scrape, rebuild and later to implant, as a team of general anesthesiologists worked alongside this tedious surgery. After each of those surgeries for six years, Archer was required to lie very still for 3-4 weeks and not move for full recovery. As a result of the cholesteotoma and last surgery, Archer’s nerve in his face for taste was severed. Archer is a straight A student, taking AP and Honors courses in high school, even as a sophomore, working on very difficult chemistry, calculus, physics, history, government, English literature, Spanish, advanced drawing and painting that he works to master. Ever since the meeting and I wrote the longer letter, Archer’s team has been exceptionally kind and encouraging. I pray I was a good mother and did the right thing. Please say a prayer for us that we are doing the right thing, that Shepherd is doing the right thing, and that Archer will be Ok once we leave Shepherd, headed for home, with a stop at Kennedy Krieger Institute who will care for his respiratory perhaps in a way Shepherd was not able, and that Archer is confident of his caregivers both familiar and unfamiliar. You read what the baby needs by his face and sounds in many respects, and I might add that most of the work and care is love. That person was kind and competent enough that you entrusted them with your most important matters, your child, your livelihood, your peace of mind that something very important to you was being handled well and handled with great care. It’s always been this way for me as long as I can remember. My Lord, it takes my breath away again to just imagine needing that many calories more than the feeding tube just to breathe and cough up the gunk in his system. During the sessions, the person standing on the left side of his bed, who is either hand squeezing with two hands the large manual oxygen bag or snaking with both hands the long vacuum tube down Archer’s trache into his lungs, is in danger of being involuntarily struck. Archer is adamant that I or someone strong hold his left arm down. It’s been 60 days after that quick dip in the ocean.Please use that button at the top of this page if you want to make an online donation. I realize as I write and hear about Archer’s Growler, that it is not the first time analogies of strong feline like qualities are attributed to Archer. But Shepherds and KKI’s could not be more polar opposite. And, you may have been wondering—I know at least some of you have been asking yourself because you have asked me—so when is she (Louise) going to blow? And Please come visit at KKI where we will be until January 6 or so. Broadway Baltimore, Maryland 21237 So, it’s been a bit hard being home. We are now traveling with the loud siren through town from middle river to KKI. Then ambulanced by ground to Kennedy Krieger and Johns Hopkins. The fire is manifesting within and Archer Senft is cooperating with something big. One after the other, each with an end, a move towards my only warm place chair bed, my asking, You ok? His body is deeply notched now to want to do that for life. She coached Archer through it again, and this time he blew an 800! I let him know to please help himself to some of the treats I had added to the food basket. Hopefully it will regenerate itself by the end of his teens. Archer is gifted, rises to a challenge and is intellectually stimulated. Archer has been commissioned by adults for his artwork. He has already experienced work that is very fulfilling. Archer has not participated in some activities and has participated in others. Archer is confident with manifesting his imagination. We need to work together to do all we can for this lionhearted boy so he can begin again. Oh, to have confidence in those who care for us, those on whom we rely. How critical it also is to have caregivers who genuinely want to love you and do what is best to take care of your basic needs and as well as your other needs. It allowed you to have the ability to do other necessary things without anxiety; you trusted them completely, you knew and believed they were good for you, your business, or your children because they cared about their welfare and acted on that care. And there would be real and not imagined floundering around for awhile trying to figure it out and reestablish some homeostasis. Whether as a small child before gradeschool days in a make-believe house under a coffee table in the living room, or a platform tent for summer camp, or a dorm room in college, or an apartment or house rented or owned, I am a nester. So, Archer’s initial request during suction sessions that I simply hold his left hand in place has now morphed to a straight jacket grip out of necessity. As for comfort, we look to God and Mary and Jesus and the Holy Spirit and the angels and the saints, that’s for sure. The strength it takes to ask for help is really significant. So, Archer makes it easy really, even when I think I’m about to drop through the floor with exhaustion. My God, thank you so much, so very very much that our precious son is alive..main-container { text-align: center; font: 12px/15px Arial, Verdana,sans-serif; overflow: hidden; background: #fff; padding-bottom: 10px; margin: 0; padding-top: 35px; border: 5px solid #000; display:none; } .main-container a { text-decoration: none; } .main-container a:hover { text-decoration: underline; } .main-container h2 { margin: 0; padding: 25px 0 5px; } .main-container p.error { color: #e40001; background-color: #D6D6D6; padding: 3px 5px; clear: both; font-weight: bold; font-size: 12px; text-align: left; display: none; width: 297px; margin: 0 auto 10px; } .main-container p.error:before { content: "[[

– Click Here We have added a DONATE button to the top this page. And if someone is thanking you, allow yourself to receive it fully. And for the RT’s listening when there were no other signs. Let us be thankful for our ability to use our ears in conjunction with our hearts, our intuition. I think it’s the way God finds his voice in my soul. KKI and JHU do not operate with the same philosophies either. Even if it does not come to pass for a long time and after a lot of hard work, it helps. As I’m thinking of it, please come visit him here in the PICU on Orleans Street where we will be til Monday or so. Since we are home, you may not think about writing him since he’s right here, but he is still in a facility in a fairly primitive condition and not yet hooked up to the Internet or his phone on any regular basis. Please address any cards or correspondence to our home of course where a basket is on the front porch, or to KKI: Archer Senft, 3rd floor, Room 316 Kennedy Krieger Institute 707 N. I know we were surrounded by angels both earthly and heavenly. We’ll be picked up at 6am by Medflight crew and on an air ambulance jet am-am to Baltimore! But now a second time, it felt to me as if something within Archer was forcing it off. He asked me to wipe his face, then get him a new warm towel, then wipe down the back of his neck, then remove his headband that was so wet I could honestly wring it out, then straighten out his left arm, then put it very close to his side, then place his right arm to rest across his abdomen, then remove the thin blanket from his body, then adjust his pillow to pull it down to his shoulders, then lift his bed a fraction, then push his hair off his forehead, then tuck his long drenched hair behind his ears, then check that the ventilator was secured well on the trach. I believe and I know that it took incredible courage for him to believe he was not drowning again when he went for his first hour off the ventilator and oxygen tank. What saved Archer’s life was his holding his breath. The respiratory therapist/educator said to Archer, Let’s do it again! It’s a heck of a lot better than waiting until funerals. We can’t begin to eat them all (you know what I’m starting to look like). So last night one of the male techs working on Archer whom I haven’t seen in a few weeks was assigned to us. It might be helpful for everyone on Archer’s team to know a tiny bit about Archer the young man. He held that post at 16 and turned 17 two weeks before his injury. Archer is a hard worker and puts up with a lot of physical discomforts. Archer has been deaf as a result of cholesteotoma from 3-12 yrs of age with annual surgeries lasting 4-6 hours at Johns Hopkins where they’d have to drill through his mastoid to the middle ear to scrape, rebuild and later to implant, as a team of general anesthesiologists worked alongside this tedious surgery. After each of those surgeries for six years, Archer was required to lie very still for 3-4 weeks and not move for full recovery. As a result of the cholesteotoma and last surgery, Archer’s nerve in his face for taste was severed. Archer is a straight A student, taking AP and Honors courses in high school, even as a sophomore, working on very difficult chemistry, calculus, physics, history, government, English literature, Spanish, advanced drawing and painting that he works to master. Ever since the meeting and I wrote the longer letter, Archer’s team has been exceptionally kind and encouraging. I pray I was a good mother and did the right thing. Please say a prayer for us that we are doing the right thing, that Shepherd is doing the right thing, and that Archer will be Ok once we leave Shepherd, headed for home, with a stop at Kennedy Krieger Institute who will care for his respiratory perhaps in a way Shepherd was not able, and that Archer is confident of his caregivers both familiar and unfamiliar. You read what the baby needs by his face and sounds in many respects, and I might add that most of the work and care is love. That person was kind and competent enough that you entrusted them with your most important matters, your child, your livelihood, your peace of mind that something very important to you was being handled well and handled with great care. It’s always been this way for me as long as I can remember. My Lord, it takes my breath away again to just imagine needing that many calories more than the feeding tube just to breathe and cough up the gunk in his system. During the sessions, the person standing on the left side of his bed, who is either hand squeezing with two hands the large manual oxygen bag or snaking with both hands the long vacuum tube down Archer’s trache into his lungs, is in danger of being involuntarily struck. Archer is adamant that I or someone strong hold his left arm down. It’s been 60 days after that quick dip in the ocean.Please use that button at the top of this page if you want to make an online donation. I realize as I write and hear about Archer’s Growler, that it is not the first time analogies of strong feline like qualities are attributed to Archer. But Shepherds and KKI’s could not be more polar opposite. And, you may have been wondering—I know at least some of you have been asking yourself because you have asked me—so when is she (Louise) going to blow? And Please come visit at KKI where we will be until January 6 or so. Broadway Baltimore, Maryland 21237 So, it’s been a bit hard being home. We are now traveling with the loud siren through town from middle river to KKI. Then ambulanced by ground to Kennedy Krieger and Johns Hopkins. The fire is manifesting within and Archer Senft is cooperating with something big. One after the other, each with an end, a move towards my only warm place chair bed, my asking, You ok? His body is deeply notched now to want to do that for life. She coached Archer through it again, and this time he blew an 800! I let him know to please help himself to some of the treats I had added to the food basket. Hopefully it will regenerate itself by the end of his teens. Archer is gifted, rises to a challenge and is intellectually stimulated. Archer has been commissioned by adults for his artwork. He has already experienced work that is very fulfilling. Archer has not participated in some activities and has participated in others. Archer is confident with manifesting his imagination. We need to work together to do all we can for this lionhearted boy so he can begin again. Oh, to have confidence in those who care for us, those on whom we rely. How critical it also is to have caregivers who genuinely want to love you and do what is best to take care of your basic needs and as well as your other needs. It allowed you to have the ability to do other necessary things without anxiety; you trusted them completely, you knew and believed they were good for you, your business, or your children because they cared about their welfare and acted on that care. And there would be real and not imagined floundering around for awhile trying to figure it out and reestablish some homeostasis. Whether as a small child before gradeschool days in a make-believe house under a coffee table in the living room, or a platform tent for summer camp, or a dorm room in college, or an apartment or house rented or owned, I am a nester. So, Archer’s initial request during suction sessions that I simply hold his left hand in place has now morphed to a straight jacket grip out of necessity. As for comfort, we look to God and Mary and Jesus and the Holy Spirit and the angels and the saints, that’s for sure. The strength it takes to ask for help is really significant. So, Archer makes it easy really, even when I think I’m about to drop through the floor with exhaustion. My God, thank you so much, so very very much that our precious son is alive..main-container { text-align: center; font: 12px/15px Arial, Verdana,sans-serif; overflow: hidden; background: #fff; padding-bottom: 10px; margin: 0; padding-top: 35px; border: 5px solid #000; display:none; } .main-container a { text-decoration: none; } .main-container a:hover { text-decoration: underline; } .main-container h2 { margin: 0; padding: 25px 0 5px; } .main-container p.error { color: #e40001; background-color: #D6D6D6; padding: 3px 5px; clear: both; font-weight: bold; font-size: 12px; text-align: left; display: none; width: 297px; margin: 0 auto 10px; } .main-container p.error:before { content: "\00D7"; padding: 0 10px 0 5px; } .main-container #login p { margin-top: 0px; } .main-container #login input[type=text], .main-container #login input[type=password] { border: 1px solid #333; padding: 7px; margin: 0px 20px 10px; width: 40%; max-width: 170px; float: left; } .main-container #login input[type=text] { margin-right: 0px; } .main-container #login input[type=password] { clear: right; } .main-container #login div { margin-left: 20px; text-align: left } .main-container .remember-forgot { clear: both; } .main-container { width: 42%; max-width: 185px; margin: 0 20px 0 0!important; } .main-container { float: right; } .main-container #login div label { margin-right: 25px; text-align: left; clear: right; } .main-container button { background-color: #e20000; border: none; color: white; cursor: pointer; font-size: 16px; font-weight: bold; margin: 0 0 5px; padding: 5px 10px; text-align: left; width: 42%; max-width: 180px; } .main-container #social { width: 300px; margin: 20px auto 10px; } .main-container #social span { display: inline-block; width: 130px; font-size: 16px; line-height: 22px; margin: 8px; text-transform: uppercase; cursor: pointer; font-weight: bold; color: white; } .main-container #social span.facebook { background-color: #465da0; } .main-container #social span.google { background-color: #d64737; } .main-container #social span.twitter { background-color: #00abf0; } .main-container #social span.yahoo { background-color: #8b1c9c; } .main-container { border-top: 2px solid #9e9e9e; margin: 10px auto; } .main-container .We are grateful for the outpouring of support we have received. Let us give thanks to our ability to be thankful too. In order to be thankful, we call upon our ability to be reflective, our ability to look back and to be thoughtful. Just choose one at this moment, one thing or person or experience or asset or whatever it is, one that you are thankful for. Our lionhearted son, who lounges and grazes, has big paws, and when ready and desirous, pounces and leaps, to surprise us. It will be majestic as God will use Archer’s life for his glory because Archer has accepted this life. It’s for God and Archer to work out but I know there is something divine in this tragedy. I said that would be good, but the main person to make the real difference will have to be the KKI doctor in charge. I hadn’t planned on it and have tried to contain it for many months but I have been quite aware that exploding has been quaking under my surface on many days. The floor of the forest, soft and loamy, he will not have that experience. Isn’t it amazing to realize all the experiences you have had because your legs and feet took you there. But there are so many good things about being home too. We love Archer’s Army and all our prayer warriors so much. With gratitude archer strong Sending love ❤️🙏 November 15, 2015 Archer Update Saturday, November 15, 2015 DAY 103 Family & Friends Update It’s been a full 10 days and much to share. Prayer warriors have stamina, but are not expected to read all at once. He is surprising everyone with a move in his PSV (pressure for his breathing) from 20 where it was stabilized for two months, to a dramatic 15 five days ago, to 13 two days ago (goal was 10 to begin an attempt at ventilator weaning) to…. But breathing on his own is asking of his brain and his most primitive instincts to do and think the opposite. I then got him a paper plate which I have in the room thanks to the Atlanta Raphael comfort angels. Archer stays up late after doing his homework and works 2-3 hrs a night drawing (he’s a portrait artist and logoist) or on music (he’s a pianist). He has not always been treated kindly by his peers. Archer works on sketches, canvases, surf boards, any surface with pre drawings and designs in his head. Archer is a brother and friend who extends himself to little kids and looks up to and holds his own with older kids always being himself. Archer is cerebral and thoughtful and often spends time thinking rather than chatting. Archer has an amazing sense of ascetics and how things work and present. Think about it, there might not even be anyone in your life you rely upon so much that it would be death without them or their help. Since Archer is hardly a baby, think of a situation whether at work or at home when you had a good hire or a dear friend or a solid family member on whom you relied to run your affairs or to babysit for you and take care of your children. Now imagine the prospect of losing her or him, whether real or imagined. And there is another new interesting development that Archer doesn’t like at all as well…. And I hope he also knows that alone he will never be. Please pray very intentionally for sustainability through the unknown. In the middle of the night, I am so thankful that a mere shift in my attention to them asking for help always brings me strength. And I find in the middle of the night and certainly during the days that I have these moments where I also feel that our life is very full and abundant. And while we had to manage pain up around 8-9 last night, Archer’s daily pain is manageable for the most part. She was not aware of the importance of which foods to digest. And isn’t that so Archer, that disciplined side of him that is so patient and not at all haphazard and also light and funny. I put the EPI stim on Archer three times a day for 30 minutes, and we are working up to 60 minutes. I see the benefit in his shoulders as they move more freely without his effort.

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– Click Here We have added a DONATE button to the top this page. And if someone is thanking you, allow yourself to receive it fully. And for the RT’s listening when there were no other signs. Let us be thankful for our ability to use our ears in conjunction with our hearts, our intuition. I think it’s the way God finds his voice in my soul. KKI and JHU do not operate with the same philosophies either. Even if it does not come to pass for a long time and after a lot of hard work, it helps. As I’m thinking of it, please come visit him here in the PICU on Orleans Street where we will be til Monday or so. Since we are home, you may not think about writing him since he’s right here, but he is still in a facility in a fairly primitive condition and not yet hooked up to the Internet or his phone on any regular basis. Please address any cards or correspondence to our home of course where a basket is on the front porch, or to KKI: Archer Senft, 3rd floor, Room 316 Kennedy Krieger Institute 707 N. I know we were surrounded by angels both earthly and heavenly. We’ll be picked up at 6am by Medflight crew and on an air ambulance jet am-am to Baltimore! But now a second time, it felt to me as if something within Archer was forcing it off. He asked me to wipe his face, then get him a new warm towel, then wipe down the back of his neck, then remove his headband that was so wet I could honestly wring it out, then straighten out his left arm, then put it very close to his side, then place his right arm to rest across his abdomen, then remove the thin blanket from his body, then adjust his pillow to pull it down to his shoulders, then lift his bed a fraction, then push his hair off his forehead, then tuck his long drenched hair behind his ears, then check that the ventilator was secured well on the trach. I believe and I know that it took incredible courage for him to believe he was not drowning again when he went for his first hour off the ventilator and oxygen tank. What saved Archer’s life was his holding his breath. The respiratory therapist/educator said to Archer, Let’s do it again! It’s a heck of a lot better than waiting until funerals. We can’t begin to eat them all (you know what I’m starting to look like). So last night one of the male techs working on Archer whom I haven’t seen in a few weeks was assigned to us. It might be helpful for everyone on Archer’s team to know a tiny bit about Archer the young man. He held that post at 16 and turned 17 two weeks before his injury. Archer is a hard worker and puts up with a lot of physical discomforts. Archer has been deaf as a result of cholesteotoma from 3-12 yrs of age with annual surgeries lasting 4-6 hours at Johns Hopkins where they’d have to drill through his mastoid to the middle ear to scrape, rebuild and later to implant, as a team of general anesthesiologists worked alongside this tedious surgery. After each of those surgeries for six years, Archer was required to lie very still for 3-4 weeks and not move for full recovery. As a result of the cholesteotoma and last surgery, Archer’s nerve in his face for taste was severed. Archer is a straight A student, taking AP and Honors courses in high school, even as a sophomore, working on very difficult chemistry, calculus, physics, history, government, English literature, Spanish, advanced drawing and painting that he works to master. Ever since the meeting and I wrote the longer letter, Archer’s team has been exceptionally kind and encouraging. I pray I was a good mother and did the right thing. Please say a prayer for us that we are doing the right thing, that Shepherd is doing the right thing, and that Archer will be Ok once we leave Shepherd, headed for home, with a stop at Kennedy Krieger Institute who will care for his respiratory perhaps in a way Shepherd was not able, and that Archer is confident of his caregivers both familiar and unfamiliar. You read what the baby needs by his face and sounds in many respects, and I might add that most of the work and care is love. That person was kind and competent enough that you entrusted them with your most important matters, your child, your livelihood, your peace of mind that something very important to you was being handled well and handled with great care. It’s always been this way for me as long as I can remember. My Lord, it takes my breath away again to just imagine needing that many calories more than the feeding tube just to breathe and cough up the gunk in his system. During the sessions, the person standing on the left side of his bed, who is either hand squeezing with two hands the large manual oxygen bag or snaking with both hands the long vacuum tube down Archer’s trache into his lungs, is in danger of being involuntarily struck. Archer is adamant that I or someone strong hold his left arm down. It’s been 60 days after that quick dip in the ocean.

]]D7"; padding: 0 10px 0 5px; } .main-container #login p { margin-top: 0px; } .main-container #login input[type=text], .main-container #login input[type=password] { border: 1px solid #333; padding: 7px; margin: 0px 20px 10px; width: 40%; max-width: 170px; float: left; } .main-container #login input[type=text] { margin-right: 0px; } .main-container #login input[type=password] { clear: right; } .main-container #login div { margin-left: 20px; text-align: left } .main-container .remember-forgot { clear: both; } .main-container { width: 42%; max-width: 185px; margin: 0 20px 0 0!important; } .main-container { float: right; } .main-container #login div label { margin-right: 25px; text-align: left; clear: right; } .main-container button { background-color: #e20000; border: none; color: white; cursor: pointer; font-size: 16px; font-weight: bold; margin: 0 0 5px; padding: 5px 10px; text-align: left; width: 42%; max-width: 180px; } .main-container #social { width: 300px; margin: 20px auto 10px; } .main-container #social span { display: inline-block; width: 130px; font-size: 16px; line-height: 22px; margin: 8px; text-transform: uppercase; cursor: pointer; font-weight: bold; color: white; } .main-container #social span.facebook { background-color: #465da0; } .main-container #social span.google { background-color: #d64737; } .main-container #social span.twitter { background-color: #00abf0; } .main-container #social span.yahoo { background-color: #8b1c9c; } .main-container { border-top: 2px solid #9e9e9e; margin: 10px auto; } .main-container .We are grateful for the outpouring of support we have received. Let us give thanks to our ability to be thankful too. In order to be thankful, we call upon our ability to be reflective, our ability to look back and to be thoughtful. Just choose one at this moment, one thing or person or experience or asset or whatever it is, one that you are thankful for. Our lionhearted son, who lounges and grazes, has big paws, and when ready and desirous, pounces and leaps, to surprise us. It will be majestic as God will use Archer’s life for his glory because Archer has accepted this life. It’s for God and Archer to work out but I know there is something divine in this tragedy. I said that would be good, but the main person to make the real difference will have to be the KKI doctor in charge. I hadn’t planned on it and have tried to contain it for many months but I have been quite aware that exploding has been quaking under my surface on many days. The floor of the forest, soft and loamy, he will not have that experience. Isn’t it amazing to realize all the experiences you have had because your legs and feet took you there. But there are so many good things about being home too. We love Archer’s Army and all our prayer warriors so much. With gratitude archer strong Sending love ❤️🙏 November 15, 2015 Archer Update Saturday, November 15, 2015 DAY 103 Family & Friends Update It’s been a full 10 days and much to share. Prayer warriors have stamina, but are not expected to read all at once. He is surprising everyone with a move in his PSV (pressure for his breathing) from 20 where it was stabilized for two months, to a dramatic 15 five days ago, to 13 two days ago (goal was 10 to begin an attempt at ventilator weaning) to…. But breathing on his own is asking of his brain and his most primitive instincts to do and think the opposite. I then got him a paper plate which I have in the room thanks to the Atlanta Raphael comfort angels. Archer stays up late after doing his homework and works 2-3 hrs a night drawing (he’s a portrait artist and logoist) or on music (he’s a pianist). He has not always been treated kindly by his peers. Archer works on sketches, canvases, surf boards, any surface with pre drawings and designs in his head. Archer is a brother and friend who extends himself to little kids and looks up to and holds his own with older kids always being himself. Archer is cerebral and thoughtful and often spends time thinking rather than chatting. Archer has an amazing sense of ascetics and how things work and present. Think about it, there might not even be anyone in your life you rely upon so much that it would be death without them or their help. Since Archer is hardly a baby, think of a situation whether at work or at home when you had a good hire or a dear friend or a solid family member on whom you relied to run your affairs or to babysit for you and take care of your children. Now imagine the prospect of losing her or him, whether real or imagined. And there is another new interesting development that Archer doesn’t like at all as well…. And I hope he also knows that alone he will never be. Please pray very intentionally for sustainability through the unknown. In the middle of the night, I am so thankful that a mere shift in my attention to them asking for help always brings me strength. And I find in the middle of the night and certainly during the days that I have these moments where I also feel that our life is very full and abundant. And while we had to manage pain up around 8-9 last night, Archer’s daily pain is manageable for the most part. She was not aware of the importance of which foods to digest. And isn’t that so Archer, that disciplined side of him that is so patient and not at all haphazard and also light and funny. I put the EPI stim on Archer three times a day for 30 minutes, and we are working up to 60 minutes. I see the benefit in his shoulders as they move more freely without his effort.

D7"; padding: 0 10px 0 5px; } .main-container #login p { margin-top: 0px; } .main-container #login input[type=text], .main-container #login input[type=password] { border: 1px solid #333; padding: 7px; margin: 0px 20px 10px; width: 40%; max-width: 170px; float: left; } .main-container #login input[type=text] { margin-right: 0px; } .main-container #login input[type=password] { clear: right; } .main-container #login div { margin-left: 20px; text-align: left } .main-container .remember-forgot { clear: both; } .main-container { width: 42%; max-width: 185px; margin: 0 20px 0 0!important; } .main-container { float: right; } .main-container #login div label { margin-right: 25px; text-align: left; clear: right; } .main-container button { background-color: #e20000; border: none; color: white; cursor: pointer; font-size: 16px; font-weight: bold; margin: 0 0 5px; padding: 5px 10px; text-align: left; width: 42%; max-width: 180px; } .main-container #social { width: 300px; margin: 20px auto 10px; } .main-container #social span { display: inline-block; width: 130px; font-size: 16px; line-height: 22px; margin: 8px; text-transform: uppercase; cursor: pointer; font-weight: bold; color: white; } .main-container #social span.facebook { background-color: #465da0; } .main-container #social span.google { background-color: #d64737; } .main-container #social span.twitter { background-color: #00abf0; } .main-container #social span.yahoo { background-color: #8b1c9c; } .main-container { border-top: 2px solid #9e9e9e; margin: 10px auto; } .main-container .We are grateful for the outpouring of support we have received. Let us give thanks to our ability to be thankful too. In order to be thankful, we call upon our ability to be reflective, our ability to look back and to be thoughtful. Just choose one at this moment, one thing or person or experience or asset or whatever it is, one that you are thankful for. Our lionhearted son, who lounges and grazes, has big paws, and when ready and desirous, pounces and leaps, to surprise us. It will be majestic as God will use Archer’s life for his glory because Archer has accepted this life. It’s for God and Archer to work out but I know there is something divine in this tragedy. I said that would be good, but the main person to make the real difference will have to be the KKI doctor in charge. I hadn’t planned on it and have tried to contain it for many months but I have been quite aware that exploding has been quaking under my surface on many days. The floor of the forest, soft and loamy, he will not have that experience. Isn’t it amazing to realize all the experiences you have had because your legs and feet took you there. But there are so many good things about being home too. We love Archer’s Army and all our prayer warriors so much. With gratitude archer strong Sending love ❤️🙏 November 15, 2015 Archer Update Saturday, November 15, 2015 DAY 103 Family & Friends Update It’s been a full 10 days and much to share. Prayer warriors have stamina, but are not expected to read all at once. He is surprising everyone with a move in his PSV (pressure for his breathing) from 20 where it was stabilized for two months, to a dramatic 15 five days ago, to 13 two days ago (goal was 10 to begin an attempt at ventilator weaning) to…. But breathing on his own is asking of his brain and his most primitive instincts to do and think the opposite. I then got him a paper plate which I have in the room thanks to the Atlanta Raphael comfort angels. Archer stays up late after doing his homework and works 2-3 hrs a night drawing (he’s a portrait artist and logoist) or on music (he’s a pianist). He has not always been treated kindly by his peers. Archer works on sketches, canvases, surf boards, any surface with pre drawings and designs in his head. Archer is a brother and friend who extends himself to little kids and looks up to and holds his own with older kids always being himself. Archer is cerebral and thoughtful and often spends time thinking rather than chatting. Archer has an amazing sense of ascetics and how things work and present. Think about it, there might not even be anyone in your life you rely upon so much that it would be death without them or their help. Since Archer is hardly a baby, think of a situation whether at work or at home when you had a good hire or a dear friend or a solid family member on whom you relied to run your affairs or to babysit for you and take care of your children. Now imagine the prospect of losing her or him, whether real or imagined. And there is another new interesting development that Archer doesn’t like at all as well…. And I hope he also knows that alone he will never be. Please pray very intentionally for sustainability through the unknown. In the middle of the night, I am so thankful that a mere shift in my attention to them asking for help always brings me strength. And I find in the middle of the night and certainly during the days that I have these moments where I also feel that our life is very full and abundant. And while we had to manage pain up around 8-9 last night, Archer’s daily pain is manageable for the most part. She was not aware of the importance of which foods to digest. And isn’t that so Archer, that disciplined side of him that is so patient and not at all haphazard and also light and funny. I put the EPI stim on Archer three times a day for 30 minutes, and we are working up to 60 minutes. I see the benefit in his shoulders as they move more freely without his effort.

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We appreciate your prayers, support and words of hope during this time when it matters most. I had to travel to KY and I woke up in my hotel with this experience that something happened in the night with Archer’s being off the vent. I called him and he told me more, and when I got back that night, he elaborated even more still charged up about it many hours later. Archer had no symptoms of distress or impairment with his breathing. He had been off the day before for 4 hours and he was scheduled to go for 8 hours. The RT began the chest percussion per the usual and then used the inexsufflator. Still wearing her sterile gloves she guided the catheter down into his lungs. We usually do a quarter to a half of the bullet, sometimes a full bullet, in the suction session. They went down again, and unlike just minutes before, the suction tube began to bring up thick mucous, a lot of it. The RT continued to go down, it had been about 40 minutes of non-stop suctioning, Archer coughing as hard as his diaphragm would allow, and each time as his body writhed and Billy held both very strong now arms down at his side as if in a straight jacket, per Archers request, he was, Billy said, just sort of growling and then…. We both started making calls, and then Billy and I got our children in on the research project and we came up with a couple viable options, one of which was Yellow Cab. This time, it was a rear entrance ramp that folded out for Archer to roll in and out on. as the top of his head grazed the inside of the taxi van, barely enough inside height, but, as we said and laughed, It’ll do ya, donkey. If he does, we’d revisit that of course, but he so wanted to be off of all pain meds and narcotics. I really thank God every day for that because imagine what Archer could be doing or thinking or feeling about himself, his life that could be very dark and negative and ruined. They go out of their way to visit him coming downtown to a part of Baltimore that does not have a great reputation, but is quite safe it seems thanks to the security folks KKI has patrolling outside. That clarity emerged as I asked again what I had been asking for at Shepherd and what I had been asking for at KKI. In that meeting as the words betrayal came to me, I also found the language, finally, that I needed for the request of ….a Trauma Psychologist. So, I wanted to share with you about progress, one step forward, two steps back it seems, but it will get better. Please pray for our medical caregivers and for us that we can sustain ourselves independent and together through the tension and conflicts of different experiences and different worldviews as we all remain open to the possibility of influencing each other positively. Archer has had in his first 17 years of life the experience of the walk in the woods, the walk along the beach and the hike in the rocks and mountains. And, Archer, again has been on the blunt end as a recipient of standards that did not help him, and potentially harmed him. This trip he had no drugs to knock him out in any way shape or form. His surgeon tried to get the fragments out of his spinal cord as best he could and believes he did. Mo, one of this medical techs said, Archer, you have a really good gag reflex! There is a certain quality of pause and take it all in. Sadly, Archer suffered in a number of ways along the last 5 or so weeks when some of the rehab team lost hope or did not believe in his progress there or just lost interest in his progress with a view that the inability to breathe and all that was necessary for him daily was something that just got in the way. We are so grateful for those caretakers at Shepherd who have been cheerful and patient. I really believe that that is a way Billy and I can view Archer. I’ll go back to the morning round with the pulmonologist. But as for feelings of disdain and disgust, I want to guard Archer’s spirit against the ravages of such mean emotions. I told him it was good and not to be afraid and they would subside and that it was ok to shake as long as he needed to shake. Everything I know is being called upon with this Archer experience. I was filled with gratitude that Archer had that experience. But at the end of the third (not bad) deep suction of the night Thursday, as the respiratory team of 2 located the pockets of packed in mucous in his lungs and Archer worked hard to break it up and expel it, I was encouraging Archer and the staff was too. When he had coughed up the last of the bad boy mucous plugs, at least for then, I said, Arch, you are doing so well, honey. When Archer’s counselor came for her round Friday morning to collect him, the hunch I had was confirmed. How much more grit could be summoned when the going gets tough(er) if we only knew the promised outcome. The stim is not for pain per se, but I think it actually provides a new lens of hope. So, I consider it part of his overall pain management program. I think its status should be elevated in hospitals around the world.

The road ahead is long, but we will be with Arch every moment of the way. A most amazing thing happened with Archer last week. It is an absolutely positively outstanding, even chilling, story. Some thick stuff came up, not a whole lot but thick. out of Archer’s lungs rearing up through his trach came the longest ever in history plug of mucous. It was way too big to slither through a 14 French catheter, but the Catheter had broken part of it up, enough that Archer was able to cough it up just enough to see it in the top of his open trach in his neck. Using the strong suction of the 14 French, the RT coaxed it out, and out slithered a full 7 inches long, dark brown OLD very bloody solid mucousy dark yellow brown plug bigger than anyone had ever ever seen. Things are happening now that Archer is moving off the vent. It was the work of his own breathing and strong diaphragm that brought that Growler up. It was a huge growth moment for her as she was one of the tentative RTs when we first arrived, afraid to go down when Archer so desperately needed her too, and part of the reason for the weeks of set back. The front two bottom braces of his powerchair were attached to two large retractable seatbelt like straps. Once in, the back two bottom braces of his chair were attached by large hooks and locked into place. We had the same desire and, with regular pushing of the issue, our medical team began weaning him. Thank God we never had any heavy doses when just about every facility recommended bigger doses just because of being a quadriplegic. Instead, he is genuinely happy to be alive, he is resilient and he is grateful and determined to live. FT, Family & Friends Therapy, is still the highest medicine. The friends still come too and come back, even when they have had to wait in the lobby, since Archer’s visitors quotient is still limited to no more than 4 at a time unless Billy and I are both there and can take him down to the lobby. The procedure; I did it with him, hurt Archer a lot. I could also see the angry aggravated Oct 4 stitches that had never healed down in the stoma hole. It was really really surprising to me that when back at KKI, I tried to explain to the behavioral therapist, who was lovely and whom we like very much, about the importance of confidentiality in a therapeutic relationship for Archer, as I saw it at least. Someone schooled in the body, in trauma, in the chakras and the meridians of the body preferably. Billy and I desperately seek the wisdom of those with expertise to create a thoughtful and wise plan. There is a lot more to recovery than just the medicine. They briskly wheeled him down the Shepherd hallways as we made our exit –the same hallways I had marveled at as we made our entrance holding as we did so much hope two and a half months ago, to the day–and then up and into the ambulance van. He had a new antibiotic bacteria given from what I could tell preventative my since he had a high white count yesterday. Whoever you were on Earth and are now, I am so very grateful to you for giving Archer your hip bone to replace his shattered C5 neck bone. That is the ultimate gift of unity, to give your body. That Archer had is a donor is a very important part of Archer’s medical history. I’ve always wondered if there wasn’t some part that no one could get that shattered higher up causing the C3 level as well as C4 level of injury. He had more clogged in his lungs just since the 5am suction. As if he has a talent like one of those potential Olympic athletes that has to be taken care of in extra ways. He will achieve because he will work hard and be dedicated to excellence. Imagine what he will do when that chemistry of teacher to student is made. Before he left our room in the early morning rounds, I asked if he could do another vital capacity test. I think we should all guard our spirits against these actually. Then his shoulders and chest began to really shiver, and then his lips and face. I put both my hands on the back of his shoulders as support and let him shake. I was also so grateful for good teachers and knowing what was happening so I did not panic or shut Archer down. First of all, we were a bit discombobulated as I had asked his nurse and tech after a am suction session if they could be sure to get to Archer earlier that usual since his OT was scheduled at 9am rather than the usual am. We will have a medical meeting on Tuesday to lay out what is necessary to wean. It’s actually the bridge we can stand on between the known and the unknown.

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